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An experience that occurred during an obstetrics 3rd year clerkship on the postpartum wards elaborates on and reflects upon the interaction between a student and patient. The stressful interaction and ultimate resolution underpin the sometimes critical moments in education that help define patient-physician relationships.

Genomics is increasingly used for diagnostic testing in children. This study describes the expectations of parents whose child received genomic testing and whether or not they were met.

A diverse stratified, purposive sample of parents of 22 children in New York City was interviewed using a semi-structured guide. Genomic test results were positive, negative, or uncertain.

Parents expressed their expectations in narrative and numeric fashion. selleck chemicals llc Parents expected that their child's test would have a direct effect on their child's diagnosis. Some believed that results would be definitive, while others recognized testing limitations. Expectations reflected parents' hope to find a diagnosis and led to disappointment when results were uninformative or did not impact clinical management.

Results suggest pre-test genetic counseling emphasize the low likelihood of actionable results; however, parents' expectations of genomics' diagnostic capabilities are strongly rooted in their need to end the diagnostic odyssey and may be difficult to manage.

Parents' hope for a resolution and effective treatment for their child is a powerful context in which genetic counseling is heard. Clinicians who provide genomic testing should continue to acknowledge parents' preconceptions. Additional research in other settings will help understand how to best address and manage parent expectations of genomic medicine.

Parents' hope for a resolution and effective treatment for their child is a powerful context in which genetic counseling is heard. Clinicians who provide genomic testing should continue to acknowledge parents' preconceptions. Additional research in other settings will help understand how to best address and manage parent expectations of genomic medicine.

Interviewing patients, we evaluated how information on adverse drug reactions (ADRs) could be customized to best meet the patients' expectations.

Recruitment followed an approach of variation sampling. Data collection was paper-based (questionnaires) and through semi-structured interviews. Participants were asked to evaluate different ADR characteristics (e.g. frequency, seriousness, lay perceptibility, and management strategies) as suitable filters to customize information and subsequently how they would apply these to meet their information wishes. Their wishes were then verified by presenting them accordingly customized information.

Forty-one participants (mean age 44.9 ± 20.1 years) were recruited. Overall, information needs were highly diverse. Therefore, it was not possible to identify one single characteristic that was generally considered suitable. Initially, participants often wished for a maximum of information (e.g. 'all' ADRs). The actual presentation of comprehensive information often surprised the recipients and consequently changed the desired information.

By simply supplying patients with ADR information they request, it is not possible to guarantee their satisfaction with such information and their understanding of it; initial wishes might be uttered without actually comprehending their practical meaning.

It is crucial to precisely assess, question, and verify information wishes in order to customize ADR information successfully.

It is crucial to precisely assess, question, and verify information wishes in order to customize ADR information successfully.

For visually impaired or blind patients, the experience of pregnancy sets them apart from nondisabled people for whom viewing of the first ultrasound has become a social and emotional milestone.

We proposed the use of 3D-printed models to allow the societal inclusion of visually impaired or blind expectant parents.

Visually impaired expectant parents were proposed to touch a 3D printed sensory vector of their prenatal classic ultrasonography.

After a classic ultrasound assessment was performed, selected volumes were processed and 3D-printed with acrylonitrile butadiene styrene. Patient satisfaction was recorded after they manipulated the models.

A total of 42 prenatal 3D prints were for 12 expectant parents, used during 20 ultrasonographic sessions with visually impaired or blind expectant parents. During 13 of them (65%), it was the mother who was affected by a visual loss whereas the father was the parent affected by the disability during 7 sessions (35%). The parent affected by the disability was congenitally blind and Braille-reader in 9 ultrasonography sessions (45%). All expectant visually impaired or blind parents expressed very significant satisfaction with the use of 3D models for inclusive use.

We have shown that acrylonitrile butadiene styrene-printed models improve the sonographic experience of visually impaired or blind expectant parents. They can thereby perform their own mental representation process by extrapolating sensory information obtained from the 3D tactile support.

These low-cost 3D-printed models improve the inclusion of visually impaired or blind expectant parents, by offering them a sensory vector of information.

These low-cost 3D-printed models improve the inclusion of visually impaired or blind expectant parents, by offering them a sensory vector of information.

Research on long-term health conditions indicates that adolescents are not actively involved during their medical visits. Active involvement is essential because this can help adolescents learn how to self-manage their treatment plan.

To co-design a video intervention to improve youth question-asking and provider education during paediatric diabetes visits.

A participatory-led approach was used to co-design the video, through a combination of interviews/ focus groups and the establishment of a Youth Advisory Group.

First, focus groups and one-to-one interviews were held with adolescents, parents and healthcare providers. Second, two workshops were held with the Youth Advisory Group, Parent Advisory Group and stakeholders on script design. Finally, an iterative development of the video took place between the research team, videographer, both advisory groups and the steering committee. There were three rounds of feedback before the video was finalised.

Adolescents' content preferences included 1) message of empowerment; 2) managing your diabetes so you can get on with the fun stuff in life; 3) Promoting independence; 4) Reasons for not speaking at clinic visits and reassurance; 5) Becoming comfortable to speak and ask questions at clinic visits; 6) Practical advice on how to ask questions.