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Future evaluation and broad dissemination of the CAB guidelines will promote the use and effectiveness of CABs in health research.
Education is a key social determinant of health. The federal Individuals with Disabilities Education Act (IDEA) purportedly affords children the right to a free and appropriate education. Yet, racial, ethnic, and economic disparities exist regarding appropriate identification and classification of children with needs for special education, and access to services.
This article first highlights gaps and disparities in special educational services, and their structural linkage to poverty. The second section describe the first years of a medical-legal collaboration between a University Center of Excellence in Developmental Disabilities (UCEDD) and Fordham University, focused on special education.
The collaboration's interdisciplinary training activities increased practical knowledge for law students and UCEDD clinicians. A legal clinic for UCEDD families enabled Fordham students to apply their skills.
Because social determinants of health often lie beyond the medical domain, interdisciplinary collaborations are needed to remediate them.
Because social determinants of health often lie beyond the medical domain, interdisciplinary collaborations are needed to remediate them.
Concept mapping builds on other qualitative methods widely used in community-engaged research and community-based participatory research (CBPR) approaches by adding intentional participatory elements to engage stakeholders and increased data collection structure via built-in quantitative elements.
This article presents examples of community-based studies using concept mapping to illustrate how public health researchers can use this method to incorporate participatory elements in projects that vary by research objective and degrees of community engagement.
Drawing from our previous experience, we present four participatory concept mapping projects. These illustrative research examples focus on projects developed by academic-community partnerships, including a hospital-based community needs assessment, the creation of a domestic violence research agenda, the study of trust in community-academic partnerships, and the development of strategies to address breast cancer through a county-level collaborative.
ual representations and action-oriented results that promote the ability of stakeholders to have increased ownership in the improvement of health outcomes in their communities.
Community-engaged research (CEnR) is an approach to conducting research that actively involves both academic and community partners. Fluzoparib supplier Yet many academic researchers have limited knowledge of emerging science and processes for effectively engaging communities and community members are often subjects of research with limited knowledge and participation in the development and implementation of research.
The purpose of this article is to explore two CEnR research training programs, both funded by National Institutes of Health (NIH), for the explicit purpose of facilitating translational science. South Carolina developed the initial program that served as a model for the Delaware program.
Information is presented about how these two programs recruit, develop, and support academic and community partnerships, as well as how each uses mentorship, funding, and structured training programs for successful CEnR with an emphasis on community-based participatory research (CBPR). The development of each program, the funparation, and support to those interested in CEnR.
Culture-specific interventions based on storytelling can address the social and cultural context of HIV that is unique to Southern African American women.
We describe a community-engaged process to construct scripted stories to promote HIV prevention based on cultural narratives from African American women living with HIV. Our process involved (1) the collection of cultural narratives, (2) establishment of a community advisory board (CAB), (3) identification of important intervention themes, (4) narrative analysis to identify stories, and (5) script writing/peer review to produce composite narrative HIV prevention messages.
Engaging community members is a strength; however, outreach should be strategic to individuals interested in a script writing creative process. This process is an adaptation of widely accepted methods to produce stories that incorporate culture organically in ways that allow for greater identification and engagement by the target audience.
Authentic stories harvested and produced from and for a culture-specific population is a critical consideration for narrative health promotion.
Authentic stories harvested and produced from and for a culture-specific population is a critical consideration for narrative health promotion.
The Flint Women's Study is a large community-based participatory qualitative study designed to create and inform community initiatives to serve Flint-area women by exploring their needs, challenges, hopes, dreams, assets, and thoughts about solutions. This article describes the study goals, processes, and lessons learned.
We conducted in-depth qualitative interviews with 100 Flint-area women or human service providers serving area women. Participants represented diverse professional backgrounds, life experiences, ages, races, and ethnicities. Community members participated in developing the qualitative interview guide, participant recruitment, qualitative coding, analysis, publication, and creation of initiatives based on results.
Partnering in discovery and in identifying solutions provides a strong foundation for building trust and mutual capacity. The coding experience helped community partners to hone marketable qualitative research skills, which can elevate community's voice in research.
Efforts to benefit women should ensure their representation in every step of the process.
Efforts to benefit women should ensure their representation in every step of the process.
Faith-based communities supporting diverse and underserved communities are increasingly being recognized by health researchers as valued partners for research engagement. Although the "why engage" is clearly documented, the how and lessons learned is less well evidenced.
This article describes community-academic collaboration initiated by African American faith-based church leaders to foster equitable partnership, engagement and shared decision making in patient-centered health research initiatives.
A phased process of relationship and capacity building was used to found and operationalize a mixed stakeholder community advisory board (CAB). Core phases presented in this article are (1) pre-CAB capacity building, (2) developing the CAB vision and mission, (3) extending CAB capacity, and (4) sustaining CAB capacity.
Collaborative governance and shared goal setting delivers research engagement which supports the data needs and aspirations of faith-based communities.
Faith-based communities have the capacity to design and deliver community appropriate governance for research engagement.
