Seerupbyrne6480

Orphan (rare) diseases include congenital or acquired diseases, the frequency of occurrence of which does not exceed a certain number established by the laws of various countries. Despite its rarity, the orphan diseases make a significant contribution to the structure of population disability and most of them have no specific treatment. One of the main clinical challenges in these patients is to ensure their high quality of life (QOL). The review describes basic non-specific and specific questionnaires for assessing QOL in children with orphan diseases. An ideal questionnaire for assessing QOL in children with orphan disease should be sufficiently reliable, valid, sensitive and specific, fill out by a child or adolescents on their own, include questions covering as much as possible all areas of life and health aspects - especially those associated with the main decease. The questionnaire should not be too huge and complicated for the patient. From https://www.selleckchem.com/products/AR-42-HDAC-42.html of the researcher, the simplicity of the tool in calculating and the ability to use the results for subsequent analysis are important.This article analyzes the main indicators of the incidence and life expectancy of the population of the Republic of Sakha (Yakutia) over a twenty-year period. An increase in the incidence rate of the population was revealed that exceeded the average for the country and the Far Eastern Federal District, including for oncological diseases, the level of which increased several times in the republic. The value of the indicator of life expectancy in the republic approached the average Russian level, while 20 years ago a much lower indicator was determined. In the dynamics of indicators of the morbidity of the population and life expectancy over a twenty-year period, a polynomial trend has been outlined. For example, the incidence of neoplasms and diseases of the circulatory system showed a sharp increase in 2004, followed by a decrease, for diseases of the digestive system - similarly, an increase in 2001 and a subsequent decrease. This aspect requires an additional detailed study of the causes of such changes in order to be able to predict them in the future.The article deals with the issues of functioning of Russian medical centers on the terms of franchising, relevant for the development of entrepreneurship in the field of medical care. Over the past few years, the number of private medical organizations in the Russian Federation has been growing, and the number of business representatives who want to participate in the development of entrepreneurship and conduct socially significant activities in the field of medical care has been increasing. The search for the most effective ways to establish and develop a business in the medical industry contributes to the growing interest in the franchise model, which allows you to expand the scale of your business. In the medical services market, the franchising model is currently much less common than in such areas as retail, hotel services and catering, however, it is in the medical industry that there is a great growth potential for the development of entrepreneurship in the field of medical services based on the franchising model. Thanks to the use of the franchising model, it is possible to predict an increase in the service culture in the business environment and the output of domestic companies to international markets. Infrastructure support plays an important role in the development of medical franchising Internet resources, training technologies, platforms for exchanging information, experience and tools for promoting the network of franchising enterprises. Despite the fact that in modern conditions, commodity and productive franchising are predominant, and the practice of operating Russian medical centers on the terms of franchising is poorly developed, there are prospects for development and social value for the Russian market of medical services in the field of medical services.Modern approaches to public health protection in the world are increasingly focused on health conservation, which involves focusing health care efforts on prevention. Timely identification of patients with arterial hypertension (AH) and provision of effective medical care is the main organizational reserve for preventing health losses. Based on the concept of "cardiovascular continuum", analysis of literature sources and the study itself, organizational measures have been developed to preserve health and prevent health losses and reduce mortality from diseases of the circulatory system. From the perspective of the concept of "cardiovascular continuum", the causes of death from BSC are two parallel interrelated processes arterial hypertension and atherosclerosis, which are the consequences of endothelial dysfunction. Analysis of literature sources and survey results 123 of experts and healthcare professionals in a number of subjects of the Russian Federation show that adequate and timely medical care to the population at BSK, and a reduction in population systolic blood pressure and the reduction of lepidopteron low-density (LDL) are organizational reserves predotvratit loss health and reduce mortality from CVD. We have developed a set of measures to reduce mortality from circulatory diseases in accordance with the concept of the "cardiovascular continuum" include the following increase population coverage with BSK medical assistance; medical surveillance and treatment of patients with prehypertension; decreased population levels of cholesterol in arterial hypertension (AH); carrying out of thrombolytic therapy; medical emergency cardiovascular conditions in accordance with the concept of "Golden hour"; improving the provision of medicines to the population, increasing the provision of cardiologists to the population. The implementation of a set of measures in the pilot rural district allowed reducing the total mortality of the population for the year of analysis by 12%.The current state of demand for medical information in the media has a high practical significance for the mass audience. #link# Medicine is a science-intensive, rapidly developing field. In this regard, it is necessary to systematically inform the public about the achievements of medicine - in science, technology and industry, explaining the essence and possible consequences of a scientific discovery, popularizing methods of treatment of a particular disease, introducing society to innovative technological processes in the medical field, achievements and developments of the medical and pharmaceutical industry. The paper reviews the experience of media coverage of medical issues in the aspect of familiarity with innovations and technologies in the context of historical development both in our country and abroad. It also describes the presentation of medical topics in modern media - in periodicals, on radio, on television - in popular science programs or TV movies, in electronic sources. In addition, the article analyzes the genre diversity of the presentation of medical topics. The paper provides information about the media coverage of the main directions of the national project "Health" and its innovative directions.The article deals with results of comparative analysis of the dynamics and trends of the incidents of malignant neoplasms in the population of the Moscow region. The Central Federal district and the Russian federation as a whole according to Rosstat data for 2009-2018. It was established that in Moscow region in comparison with other territories, the level and growth rates of the incidence of malignant neoplasms were lower. In the structure of the incidence of malignant neoplasms, the first rank places are occupied by breast, skin, lung, colon and prostate cancer. Attention is drawn to the fact that over the entire period of observation, the indicator of the number of people under medical supervision in the Moscow region was consistently higher than in the Russian Federation and the Central Federal district. Over the period of 2012-2018, the share of malignant neoplasms of the first stage of the spread of the tumor process increased by 23.4% in the region, and the share of stages III and IV decreased (by 16.9% and 12.3%, respectively).The increase in the number of newly detected malignancies seems to be due to increased diagnostic capabilities in recent times.The rapidly changing conditions of a modern unstable society change all spheres of human activity, including education. The increasing complexity of the educational process leads to an increase in the burden on higher education teachers. The implementation of pedagogical activities is accompanied by a number of difficulties, some of which are largely experienced by teachers, difficult to solve and become life difficulties. Life difficulties related to professional activity affect the state of health and worsen it. The work attempts to identify the relationship between the life difficulties of university teachers and the presence of chronic diseases.The article presents the results of the author's research that determines the degree of influence of monotonous (monotonous) labor processes on the drivers (and their assistants) of traction rolling stock of railway transport. Information is collected in order to develop a set of measures to overcome the monotony of work, improve the quality of working life and psychophysiological health of employees, and as a result, ensure traffic safety, improving the safety system for drivers and improving the quality of passenger transport.The study examines the issues of assessing the impact on occupational safety of public health workers of psycho-emotional factors associated with the provision of medical services and the socio-economic and industrial conditions of their work. link2 As the analysis conducted by the authors on the basis of foreign sources showed, this problem is characteristic not only for Russia, but also for most medical institutions in other countries. It should be noted that these problems were especially aggravated during the coronavirus pandemic, when it was necessary to work in conditions of increased risk of infection, in excess of the established time norm, etc. Moreover, the tools to overcome professional burnout and improve occupational safety are providing medical institutions with the required personnel in sufficient quantities to solve the tasks, providing diagnostic and medical equipment, as well as protective equipment. It is very important that evidence-based labor standards are implemented, as they have not been reviewed in most cases since Soviet times. At the same time, ensuring decent work indicators, especially wages, is very important.The article investigated the state of the competitive environment on the market of medical services of the Krasnodar territory, which included socio-economic indicators needed to understand current market conditions such as the number of medical organizations of primary care and health manpower; the volume of paid medical services, rendered to population of the region and individual costs for medical services; the investment performance of the industry, the possibility of participation of private medical organizations in the implementation of the Territorial program of obligatory medical insurance. link3 The author's interpretation reveals the concept of «business reputation of a primary-level medical organization». It is proved that the «business reputation» on the Internet or online reputation has become a strategic tool for ensuring the competitive advantages of a primary - level medical organization. The content analysis of Internet resources conducted in the study showed that the online reputation of a primary care organization is primarily patient reviews (negative and positive), and online reputation management in the Internet is continuous work with patient reviews, the process of communicating with the audience, publishing information materials, etc.